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Older Child Adoption Blog

02/19/07

FAE: Our Experiences

Posted by : Cindy Bodie in Older Child Adoption Blog at 05:16 am , 590 words, 94 views  
Categories: Disorders/ Illness, Adoptive Families, Welcome To Our Blog

“As little as one drink a day can increase the odds for low birth weight and raise your child's risk for problems with learning, speech, attention span, language, and hyperactivity. And some research has shown that expectant moms who have as little as one drink per week are more likely than nondrinkers to have children who later exhibit aggressive and delinquent behavior.”

My children, especially in the last decade, with more paperwork and documentation involved, have come out of the system with Fetal Alcohol Effects, at the very least.

I would read their case paperwork carefully, highlighting areas that I’d question the workers about, in my attempts to ensure that I would be able to find the necessary resources to help them get through childhood, adolescence and school.

Of course, there is no way to be totally prepared for the issues that evolve, especially those that spring from the damage done in utero, how can it be either measured or predicted?

“And babies exposed to alcohol in utero — even if they don't have full-blown FAS — may still be born with some of these birth defects or later exhibit a number of mental, physical, or behavioral problems.”

One can find FAE and FAS information everywhere, regarding what causes it, and it is nearly a new research area, it is ephemeral in nature; tough to pinpoint, especially FAE, but it is obvious to the adoptive parent that something isn’t quite right.

The incidence of fetal alcohol spectrum disorders (FASD) is increasing, even though it is 100% preventable. This frustrates me immensely, as it indicates a range, a variety, indeed a continuum, of ailments or syndromes, making diagnoses all the more elusive.

There are a great many position papers on the subject, blogs dedicated to parenting children of FAE and FAS, yet I’m just blurting out personal experience information here, how this insidious disorder seeps into the lives of nearly every child adopted from the foster care system, my own unsubstantiated opinion, as I observe, and work, with my children.

It is very safe to say that alcohol and drug abuse was involved in CPS reasoning for removal and termination of parental rights.

There are many signs and symptoms, I only included the ones that are prevalent within my family, thankfully we fall into FAE, rather than FAS.

• low birth weight
• poor coordination/fine motor skills
• poor socialization skills, such as difficulty building and maintaining friendships and relating to groups
• lack of imagination or curiosity
• learning difficulties, including poor memory, inability to understand concepts such as time and money, poor language comprehension, poor problem-solving skills
• behavioral problems, including hyperactivity, inability to concentrate, social withdrawal, stubbornness, impulsiveness, and anxiety

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So, it’s obvious we have a problem, what’s the solution? And combine the above symptoms with the trauma issues; no wonder my children can be difficult.

I cannot give solutions as I don’t have them, FAE and FAS are irreversible, that is documented.

I believe that I can give hope however, in that I do have grown children who’ve overcome their initial labeled disabilities and have become high functioning adults. I am grasping at the contributing factors now, if I had definitive ones, I’d share them, but these are guesses from my gut, born from our experiences.

We found resources, alternative school situations, therapies, stability, church involvement, security, my own stubbornness, hopefulness and positive expectancies that seemed to have re-birthed once negatively labeled children… years and years of commitment, heartbreak, joy and rewards.

It’s not been easy.

Comments, Pingbacks:

Comment from: Sandra Hanks Benoiton [Member] Email · http://international.adoptionblogs.com/
We had a foster son with FASD and had to watch as others in his bio family drank copiously while pregnant. This followed by the sight of them breast feeding while downing bloody mary's and chain smoking was enough to make me sick.
I have to wonder why this isn't a crime ...
PermalinkPermalink 02/19/07 @ 07:04
Comment from: Cindy Bodie [Member] Email · http://older-child.adoptionblogs.com
My sentiments exactly, as we, the sober ones, try and pick up the pieces.
PermalinkPermalink 02/19/07 @ 07:08
Comment from: John [Member] Email
Cindy, thanks for covering FAE. Learning to accomdate the problems seems to be the only solution.

My youngest, age 17 has FAE, and has always had great problems sleeping. He tends to overreact to most meds. Have you run into this, and what was your solution?
PermalinkPermalink 02/19/07 @ 11:52
Comment from: Angela [Member] Email · http://ukraine.adoptionblogs.com/
What I find interesting is that FAE is disappearing. More and more folks are using ARND (alcohol-related neurodevelopmental disorder).

For example the CDC has made the change in vocabulary. http://www.cdc.gov/ncbddd/fas/fasask.htm

I was talking to my daughter's doctor 2 weeks ago. And she mentioned that there is a rumor ARND will be in the next DSM.
PermalinkPermalink 02/19/07 @ 12:52
Comment from: Cindy Bodie [Member] Email · http://older-child.adoptionblogs.com
I ran across that acronym as well today, first time I'd heard it.
PermalinkPermalink 02/19/07 @ 14:18
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